Community Support

Factor Support Network supports the bleeding disorders community each year by donating more than 10% of its profits to organizations and programs that are identified by our clients. In addition our Client Service Representatives volunteer and serve on planning committees and help with fundraising events, family retreats, camps, and holiday parties.

                 Recent Recipients: 

Bleeding Disorders Foundation of Washington

Central California Hemophilia Foundation

Committee of Ten Thousand

Delaware Valley Chapter NHF

Hemophilia Patient and Program Support (HPPS)

Hemophilia Association of the Capital Area

Hemophilia Association of San Diego County

Hemophilia Federation of America (HFA)

Hemophilia Foundation of Greater Florida

Hemophilia Foundation of Maryland

Hemophilia Foundation of Nevada

Hemophilia Foundation of New Mexico

Hemophilia Foundation of Northern California

Hemophilia Foundation of Oregon

Hemophilia Foundation of Southern California

Hemophilia Outreach of El Paso, Texas

Inland Empire Bleeding Disorders (Washington)

LA Kelley Communications, Inc.

New England Hemophilia Association (Maine)

Patient Services Inc. (PSI)

Patient Services Items Program (PSIp)

Utah Hemophilia Foundation

United Virginia Chapter NHF

The Millie Gonzalez Memorial Scholarship

The Mike Hylton & Ron Niederman Memorial Scholarship

Community Advocacy

  One voice makes a difference.

         One letter makes a difference.

                One visit makes a difference.

• Attend FDA Committee Hearings: Blood Safety & Availability and Blood Products Advisory

• Educate legislators about the lives of people with bleeding disorders

• Seek to increase prevention and awareness of Hepatitis & HIV

• Helped get the Ricky Ray Hemophilia Relief Fund Act enacted and funded

• Support comprehensive health insurance coverage for clotting factor products

• Work to expand the lifetime caps of health insurance

• Pursue efforts to increase federal funding for HTC's

• Assist efforts to pass MediGap legislation and to limit the amount of Medicare co-pays

• Partner with stakeholders to reauthorize the Ryan White Care Act

• Participate in letter writing campaigns, most recently to pass GINA - the Genetic Information Nondiscrimination Act

With thousands of volunteer hours, FSN participates with and organizes teams for the NHF Washington Days and State Legislative Days. We monitor and attend regulatory meetings to assure the safety and availability of clotting products.

On a biannual basis, FSN staff participates in the Town Meetings held by the Committee of Ten Thousand (COTT). Factor Support Network is the sole sponsor of the HCV/HIV News, a publication of the Hemophilia Association of the Capital Area and provides support for numerous other community based newsletters.

FSN staff are invited to sit on many panels for the NHF Annual Conference, the HFA Annual Symposium and many local chapter Family Education Days. FSN continues to seek and promote sound education to assist community members in decisions regarding their health care.

Client Service Representatives Volunteer

Our Client Service Representatives Volunteer across the county. We participate in, contribute to, and/or sponsor:

• Chapter Events
• Summer Camps
• Fishing Trips
• Educational Dinners
• Men's & Women's Support Groups
• Nutritional Counseling
• Fundraising Activities
• Fitness Training
• Family Camps
• Holiday Parties
• Women's Retreats